Message Board
Please feel free to join in on the conversation.
Name: Rosemary & John
E-mail:
Date Posted: 12:07, 02 12 2009
Message: Hi Mary,
It has been a pleasure to meet you and your Mom while John and I are here in Philly. Your web site is awesome and inspiring. You are one courageous lady and we know that with Dr. Schwartzman by your side, you will begin to feel better. He won't quit until you do! Just keep it simple and slow and progress will happen. Sometimes, we don't see it day to day or even week to week, but it will happen. And, sometimes, I think progress is even measured in not going backwards, just steady as she goes! RSD is a nasty disease, but the best chance we all have at winning against it is to keep fighting and not give in, no matter what! We are inspired by your story of courage and faith and you have a very devoted family. We will keep you in our thoughts and prayers.
Name: tracy brown
E-mail:
Date Posted: 10:26, 30 11 2009
Message: hi my name is tracy and i am from tallahassee fl. and i am suffering from severe pain and numbness and burning and it will get real hot and then ice cold sometimes where i can't even move my arms and one leg i can't even move but i use crutches since i can't use it but they diagnosed me with rsd which is a raley disease that u don't hear about that causes all the same symptoms that you described so you might won't to ask your doctor about it. It is hard to diagnose it but ask them and if you like you could call me at 850-508-5937 and leave me a message so i know it is u and we can talk i would love to chat with u
Name: jay
E-mail:
Date Posted: 05:01, 14 07 2008
Message: Hello Mary Glad to see your doing well. Keep up the good work.
Name: Drew Bagley
E-mail:
Date Posted: 20:41, 05 07 2008
Message: Mary, you are nothing short of amazing. Keep strong, love life. You've earned every moment of it.
Name:
E-mail:
Date Posted:
Message:
Name: donna slone
E-mail:
Date Posted: 20:03, 19 06 2008
Message: Mary,Am so very happy to see the progress that you have made. I know you have a long road a head of you,but know your strength and all the love will be with you on your journey.
God Bless Donna
Name: Mary Remotti
E-mail:
Date Posted: 22:44, 06 06 2008
Message: Hey everyone I just wanted to say Hi and thank you to everyone for all your love and support. I am doing alot better then I was before. My life is going good. I don't think i could have done it will out all of you. Just a quick thank you. And I love you all very much.
Love Mary
Name: NancyB
E-mail:
Date Posted: 21:24, 28 03 2008
Message: Hey Mary,
I heard about your situation from a friend of yours who called the radio station and won some concert tickets from us !!! What a crazy thing to have to go through, you are one tough chick. Thanks for sharing your story, and I hope you inspire other people to remain strong and have faith that things can get better.
God Bless
NancyB
Name: will moran
E-mail:
Date Posted: 20:37, 28 03 2008
Message: hey mary i forgot to add from my last report if you need a friendly chat or support with any issues you may have you and your family can contact me at lksuperstar2001@hotmail.com if i can help with fundraiseing or just someone to support you and your family im here to help the best way i can yours faithfully will moran
Name: will moran
E-mail:
Date Posted: 20:32, 28 03 2008
Message: hey mary how are you doing. i came across your website and i have read everything your going through. and i have never met a more braver and determind young lady as yourself i really hope everything goes great for you and if theres anything i can do to help please ask away. i live in the uk so if theres any fundraiseing or any support i can other im here for you and your family youths faithfully will moran
Name: Erikka
E-mail:
Date Posted: 14:52, 24 03 2008
Message: Watching the videos is like seeing two different people. Mary, its just amazing the progress you have made. Keep up the good work and enjoy time with your friends and family.
Erikka :-)
Name:
E-mail:
Date Posted:
Message:
Name: Heidi Dennis (Schwab)
E-mail:
Date Posted: 14:21, 05 03 2008
Message: Hi Remotti Family!
This is my first visit to the site and I am so happy to hear that everything is going so well! I admire your courage for trying a new therapy and practically moving mountains to get there. You guys are amazing! You're success will not only make your life whole again but it will also go on to help other people who are suffering with RSD. Mary I hope that your progress continues. Your attitude is so great to be dealing with all of this at such a young age. You are an inspiration :)
Love Heidi
Name: Donna Gambrell
E-mail:
Date Posted: 21:09, 02 03 2008
Message: Hi Mary,
I am your 2nd cousin on your mother's side, yes I too am a Stanley. LOL. I have been following your progress and am so impressed with you and the gains your are making. Uncle Floyd Stanley is following your progress as well via the internet. We all are praying for you and are excited with everything thing you are able to do. Keep up the good work!!!
I know you may get homesick, however, stay as long as you can and get as much therapy as you can. I am a nurse who use to work with Rehab. and I know the importance of therapy. I dont know if you remember but you met me at a family reunion in Crestview years ago. I hope to see you again soon.
Well, I hope you have a good day tomorrow!!! I Love you and Your Mom, Donna
Name: Betty and Charlie Moore
E-mail:
Date Posted: 17:17, 27 02 2008
Message: Hi, Mary.
We think of you often. Here are a few riddles.
1.) For whom do people always take off their hats?
2.) Why does the Statue of Liberty stand in New York Harbor?
3.) What do the police do when the think that Mark stole a watch?
4.) Why did the tomato turn red?
please e-mail us your address, we'd like to send you a card.
As always your are in our prayers.
Riddle answers 1(barbers)2 (because it can't sit).3(They Question Mark [?]) 4(Because it saw the salad dressing)
We're looking forward to your coming home.
Love, Betty and Charlie
P.S. MERRILL: The doctor told me to drink some lemon juice after a hot bath.
CHERYL: Did you drink the lemon juice?
MERRILL: No, I haven't finished drinking the hot bath yet.
Name: Maureen Kearns
E-mail:
Date Posted: 16:36, 27 02 2008
Message: Hi Mary, I'm so glad to see your progress! Roya and I check your journal every day. Our thoughts and prayers are with you. Hi Margaret & Claude. :) x0x0x0x
Maureen Kearns and Roya
Name: Anne Stanley
E-mail:
Date Posted: 16:52, 24 02 2008
Message: Mary, it was so great to open the journal and see your words.
Melissa does a wonderful job, and I look forward to reading all of her entries, but it was a special treat to know that you felt well enough to write an entry yourself. I hope you can soon get out of the walls of the hospital and see the areas around you instead of just seeing Melissa's pictures. Tell your mother and Melissa I said hi, and I hope all of you will be able to be closer to your family soon.
Aunt Anne
Name: mary
E-mail:
Date Posted: 12:07, 22 02 2008
Message: Hi everyone thank you for all your kind words and thoughts and prayers. It means a lot to know that i have so many people thinking of me and praying for my recovery. I'm doing good and so are mom and Melissa a little home sick but thats about it. Hope to see you all soon.
Love Mary
Name: Cheryl Dargie
E-mail:
Date Posted: 09:19, 22 02 2008
Message: Hi Mary, Melissa, and Margaret,
It is snowing here today. I have read all the catch ups due to the fact that I have not talked with James or Claude in a while. News sounds greater all the time. We think about you often Mary. Dr. C was asking about Mary yesterday and will be glad to set up a meeting with Father Diorio when you get back and can sit up front. Talk soon I hope.
Love,
Cher, Dan, Dillon, and Chase
Name: Mary
E-mail:
Date Posted: 19:55, 17 02 2008
Message: Ok first of all George I know you smell i have lived with you for 19 years. so i know that it's true. So don't go giving me all that about it smelling like a warm spring day. We all know that it isn't true. Tell that guy that I gave him his sock like a year ago so i don't know what you want me to do about him calling you. Its not my problem now. Are you sure that he wasn't asking you for the sock that you have of his? I think he was. Well have fun shinning your igloo hope it melts soon so you are not to cold. love you
Love Mary
Know Hector I have no clue what it is that you are talking about now remember that the temperature of that thing under the sink that makes you smell so funny can''t be to hot or cold so yeah don't forget ok. Oh yeah I almost forgot the lady of the ladyness says hi and to stop calling her at all hours of the night and she wants her shoes back.
Sonia L
Yes i have been thinking up ways to prank Bob i think i got a one or two ill tell you about later. yes i remember happy feet. lol I can imagine that George smells. I miss you two can't wait to be home see you soon I hope.
Love mary
Name: Hector
E-mail:
Date Posted: 00:25, 17 02 2008
Message: George,
The intricacies of your smellology are far to copious for my minuscule nostrils. Please refrain from such gastric dispatch of analogous smellology. The Lady of the Ladyness can not coup with such ludicrous aromas.
Hector
Name: George
E-mail:
Date Posted: 19:08, 16 02 2008
Message: Lady of the ladyness,
Please do no not believe these fibs about me smelling. My aroma is that of a blossoming flower on a warm spring day!!! Really it is!!!!! Anyway Lady, that guy called and he wanted to know if you still had his sock. Please give him his sock back so he'll stop harassing me! Okay ladyness I godda get back and shine my igloo now before if gets to be warm and it melts.
Love,
George
Name: Sonia L
E-mail:
Date Posted: 17:32, 16 02 2008
Message: Little One. Remember Happy Feet? You better be thinking of a prank for Bob. Miss ya "Lady of the Ladiness." Luckily you are not here tonight, George SMELLS!
Name: Jaime
E-mail:
Date Posted: 06:15, 16 02 2008
Message: Hi Mary (Melissa, and Family)! Glad to read all the wonderful things you have accomplished in the past few weeks. Keep up the good spirits. I am confident you will beat this! Lots of love and prayers from the FREEZING state of CT!
Name: Erikka
E-mail:
Date Posted: 16:50, 14 02 2008
Message: Hey Mary,
Keep up the good work! I am so happy to hear everything is going well in Mexico. Keep on pressing forward and know that everyone is pulling for you.
Name: Myra
E-mail:
Date Posted: 21:57, 09 02 2008
Message: Dear Mary and Family,
I just checked in and was happy to see the great miracle that is unfolding for you Mary. Keep up the great work that you are doing. I am a Reiki friend of Sarah Root and I am thrilled to watch your progress. Thanks for the photos too, it was wonderful to see you Mary up and smiling. I will ask my Reiki friends to keep sending Reiki to you. God Bless YOU!
Love and Reiki hugs to you all, Myra
Name: Stefania
E-mail:
Date Posted: 06:19, 06 02 2008
Message: Hi Mary, I just wanted to let you know that I have been thinking about you and your family. I admire your courage and strength!! Keep it up!!! Love, Stefania
Name: Erikka
E-mail:
Date Posted: 19:14, 03 02 2008
Message: Mary,
I am so happy with all the progress you are making! Feel free to email me anytime as I see you like to be on your computer your sister has my email. Its people like you who let others know that there is hope! Keep making progress, girl!
Name: Suzanne Hyatt
E-mail:
Date Posted: 13:55, 01 02 2008
Message: Mary,
It seems like you are making great progress. I am so proud of you. I am really looking forward to meeting you next week. Keep up the good work and stay positive. See you on Monday.
Suzie Hyatt :)
Name: Melissa
E-mail:
Date Posted: 01:39, 01 02 2008
Message: Thank you everyone for your continued messages. Mary truly enjoys reading them and she extends a special thank you to Sonia and Erikka for the beautiful cards and to the students of CSUCI's ASI for the wonderful gifts. The cards and the dolphin are on the nightstand next to her bed.
We are so blessed that all of you are with us in spirit!
(FYI: The address is in Jay's post below)
Name: Elena
E-mail:
Date Posted: 21:45, 27 01 2008
Message: Mary:
I been reading that you have been having rough days! I also talk to your mom today.
My dearest Mary; don't give up I promise you are better then when you start the coma you've been true so much ... I can relate to you so much we have such a painful and complicated life that there are days that are more difficult that others to make them true!
However I beg you don't give up get the strength from inside your soul and Good will be with you! I know its not easy I feel the same pain you do and I have been dealing with it for 18 years, but get the strength from all the people who adore you and have been there for you, there will be a rose garden soon you'll see. Im here for you!!!
Love
Name: Jodie York
E-mail:
Date Posted: 12:49, 27 01 2008
Message: Hi Miss Mary. Me and Baby Ruth send you our love. Ruthie is feeling and doing so much better, and wanted me to tell you thanks again for asking and thinking about her...we are thinking about you, darling, and want you to feel better and better. Love you, Jodie & Baby Ruth. :)
Name: Christina
E-mail:
Date Posted: 20:29, 22 01 2008
Message: Mary,
Oh my gosh!! There is that beautiful, beautiful smile! You look absolutely wonderful! My thoughts and prayers are with you daily. Keep up the good work you have alot of prayers and support from many, many people!
Name: Debbie
E-mail:
Date Posted: 10:58, 22 01 2008
Message: Mary, Marg, Claude, Mellissa, James, and Jay,
I am astounded at haw rapidly everything is happening! Mary you look wonderful! I can't believe how far you have come! We are constantly keeping you in our prayers and hearts! I know this journey has been very difficult on all of you and I thank God that everyones prayers have been answered and Mary, you are on the mend! You are truely blessed to have such a caring team of medical staff to care for your needs. I really wish to thank Melissa for keeping us all updated, that has truely been wonderful for all of us at home wondering what is happening! God bless, I pray for nothing but the best for all of you and can't wait till you can come home!
Love ya
Debbie and all the kids!
Name: Kerry
E-mail:
Date Posted: 01:23, 20 01 2008
Message: I am so glad that everything seems to be going as planned. It was great to see you smilling even with the sheets touching your legs and arms..keep up the great work and I hope to be able to see you when you get home..your in our thoughts and prays
Name: mary schwab
E-mail:
Date Posted: 07:20, 19 01 2008
Message: Mary, I,ve been following your progress and so happy to hear you are doing well, and it is so good to see you smiling and feeding yourself. BRAVO to you and your whole loving family and medical team. ope to see you all home in Windsor Locks soon. Love from The Schwab family
Name: Jaime
E-mail:
Date Posted: 10:38, 18 01 2008
Message: I must say, I'm amazed and excited to hear of your progress, Mary. It was such a shock (in a good way) to read Melissa's blog (Friday 1/18) and see that the doctor took time to sit and talk with you at such great lengths. It truly shows how much the doctors down there seem to care--such a level of compassion that many doctors here in the USA seem to lack. Good luck and keep on getting better!
Name: Sarah Root
E-mail:
Date Posted: 19:37, 16 01 2008
Message: Mary, it is great to know that you are making such great strides and smiling and laughing again. It makes many people very happy!! I hope that you can sense all the good energy that came your way from prayer circles, wise animals and Reiki practicioners.....helping you heal and supporting your journey. Keep calling on those sources...they are yours! :-)
I bow to you,
Sarah*
Name: Erikka
E-mail:
Date Posted: 16:39, 16 01 2008
Message: Hi Mary, Melissa, and Family!
Mary it is so good to see a smile on your face! I have been praying for you everyday and I am so, so happy that the coma worked! Its such a blessing that there are Dr's out there willing to "go out of bounds" to try to help others. Hopefully from this a less radical form of the coma can be found like the Ketamine injections or drips that are happening in the U.S. I will continue to pray that you get stronger each day.
Name: Lindsay Spengler
E-mail:
Date Posted: 20:51, 15 01 2008
Message: Hey Mary and Mr. and Mrs. Remotti and Melissa!
I am so glad to hear that you are doing well!!! It is such an answer to prayer!!! I have been following your progress and am to grateful for the updates! Since my coma in Monterrey I have continued to progress everyday! This week I even walked to the bathroom on my own! I did have some nurses next to me but didn't need the support! What I miracle! Everyone in Mexico is so wonderful! They are amazing people and I know you are in the right place! If you ever need ANYTHING please just give me a call when your up to it. Or you may always e-mail me.
I CAN'T WAIT TO MEET YOU AND YOUR FAMILY!!! THEN WE CAN LAUGH ABOUT ALL OUR WEIRD AND CRAZY "MOMENTS" AND HALLUCINATIONS!
KEEP UP THE AWESOME WORK AND YOU ARE ALWAYS IN MY PRAYERS AS IS EVERYONE ELSE WITH RSD!
Love and Prayers,
Lindsay
Name: Amanda Bagley
E-mail:
Date Posted: 18:09, 15 01 2008
Message: Mary- I am so glad to see that you are doing well! Wishing you and your family the best!
Name: Jean
E-mail:
Date Posted: 10:39, 15 01 2008
Message: Hi Mary, Margaret, Claudio, and Melissa,
I'm sure Mary won't remember me, but I have been following her progress on the Journal and am so happy for her that it worked. My prayers go out to her and all of you. Everyone I sold car raffle tickets to has been asking about you. I refer them to your web site, since Melissa has been doing such a great job on keeping it up to date. Hang in there Margaret and Claude!! It seems like the worst is over. All of you are in my thoughts. Jean DeSousa and Family
Name: Kayla
E-mail:
Date Posted: 18:18, 13 01 2008
Message: Hey Mary.
I hope your doing really good. and my thoughts and prayers are with you and your family. i hope everything ends out okay.
Love
<3 Kayla
Name: Melissa
E-mail:
Date Posted: 14:48, 11 01 2008
Message: Thank you all for your taking time to write. We appreciate it and I know Mary will as well. Be assured that as soon as she is wide awake, I will share all of your sweet and encouraging messages with her.
Name: John Anderson
E-mail:
Date Posted: 18:16, 10 01 2008
Message: Mary you are in my thoughts every day. To see the pain that you have endured the last few years was hard for me to see. Looking forward to the day when I can see a smile on your face. So many fun times are ahead for us. Keep Strong! Love John, Karen, Mike
Name: Karen DiPietro
E-mail:
Date Posted: 10:02, 10 01 2008
Message: Hi Mary,
My prayers are being answered, I hear you are doing well!! I check everyday to see how you are doing. I looked at your pictures and it is as the pain is out of you face. I pray that you are in no pain and wake peacefully. I want to see you walk!!!! You and your family are doing a great job. I am impressed by your strength and courage. Stay strong.
PS. sorry Mom that I missed your call. Please try again. You sound a little better than before you left, but I can tell that you are stressed out. Please take care of yourself. Mary and your family need you.
Much love, Karen DiPietro
Name: Sarah Root
E-mail:
Date Posted: 18:51, 09 01 2008
Message: Hundreds of us keep sending strong prayers and energy to Mary and family, from all over the country. We are relieved and impressed at your progress thus far, Mary. May you wake up sweetly and smoothly!
With love and blessings from three prayer circles behind me,
Sarah Root
Name: The Bagley\'s
E-mail:
Date Posted: 17:36, 09 01 2008
Message: The Remotti family has been in our thoughts and prayers. We hope that Mary wakes without any pain and takes well to physical therapy! Take care and stay strong!
Name: Elena
E-mail:
Date Posted: 17:52, 08 01 2008
Message: It has been such an inspiration to meet all of you! You are all so sweet! We have had a great time getting to know you and seeing pictures of your family. Mary definitelyhas a lot of love around her. We trust and have a lot of hope that Mary will be so much better when she wakes up especially with all of you around her! Our prayers are with her constantly!!!! :)
Name: Jaime (Rubino) Plancon
E-mail:
Date Posted: 16:52, 08 01 2008
Message: Hi Mel and Family,
I just wanted to let you all know that you've all been in my thoughts and prayers during your trying times, and even more so now that you are all in Mexico. I pray for Mary's speedy recovery and healing from her awful pain and suffering. Take care and be well!
Name: Erikka
E-mail:
Date Posted: 17:04, 06 01 2008
Message: Hi Mary, Melissa, and Family,
I am so sorry for not calling you back. I had my SCS surgery about 3-4 weeks ago and when you called Mary it was the night of my surgery so I was really sore. I promise to call you back when you get home. I am praying that this treatment will make you feel 100% better. I am so happy you get this oppertunity to get this treatment. My family and I are praying for you.
Name: Jay
E-mail:
Date Posted: 18:41, 05 01 2008
Message: Should you want to send a card or the like the mailing address for Mary in Monterrey is:
Hampton Inn Monterrey-Galarias Obispado
Av. Gonzalitos 415 Sur
Monterrey, Mexico 64060
Name: Karen DiPietro
E-mail:
Date Posted: 13:52, 05 01 2008
Message: Mary, You are in our thoughts and prayers. When Michele and I met yo you at Bylthsdale, I saw the pain you were in and pray that this treatment brings much success. We think of you constantly and can't wait for you to be home. You are a strong person, I know from Michele's pain how terrible RSD is. Michele said to say Hi, unfortunately with the cold weather she has been bed ridden for weeks. This is going to be the year for miracles.
Tell your mom, and family my thoughts are with them. I'm sure this is just as hard for them.
Love, your RSD friends, Karen and Michele
Name: Sarah Root
E-mail:
Date Posted: 08:11, 05 01 2008
Message: Melissa, Mary and family,
I continue to hope that all is going well there. I know that this treatment will help you, Mary! Melissa, please contact me as soon as you can, as there are ways you can help Mary during her treatment....
Blessings, prayers and warmth to all of you,
Sarah*
Name: Debbie
E-mail:
Date Posted: 14:35, 04 01 2008
Message: Mary and Family,
I have anxiously been waiting to hear what is happening and am so glad to know you have arrived in Mexico and are settling in for treatment! You are all with our thoughts and prayers! I am looking forward to the day when this is all behind you and life is full of joy again. Don't forget to call me if you need anything at home taken care of! If I can't get to it Lori, Jane, Betty, Sean, or Patty and a host of others will gladly help out! Please remember that! If Mary or any of you wants anything forwarded to her just say the word we'll get it to her! Please take care and remember to rest and take care of yourself!
Love,
Debbie
Name: Anne Stanley
E-mail:
Date Posted: 13:51, 04 01 2008
Message: Mary and family,
I just wanted you to know that the Stanleys, Brewers, and Gordons are thinking about you. We will be checking the web site to see how you are doing each day. We will pray for God to direct your doctors and nurses when they make decisions about your future and your health. When you get a mailing address, let us know.
Aunt Anne
Name: Melissa
E-mail:
Date Posted: 14:35, 03 01 2008
Message: Well, we are here in Mexico. Dr. Cantu is with Mary now discussing history and doing an evaluation. Mary will most likely be scheduled to begin treatment tomorrow morning or Saturday morning. I will keep you all updated and post a new journal update later tonight.
Thank you all for your healing energy, thoughts, prayers. We are blessed to have so many amazing people in our lives.
With love,
Melissa
Name: Lori Macdonald
E-mail:
Date Posted: 10:25, 02 01 2008
Message: Dear Mary and family,
You don't know me but your sister Melissa is a colleague and friend. Today is the day you arrive in Mexico to begin what we all hope, is the end of your horrible disease. I want you to know my good thoughts and my prayers are with you all but more importantly there are many who remember you in their prayers. I hope your treatment goes smoothly. Blessings to you and your family.
Name: Sarah Root
E-mail:
Date Posted: 07:56, 02 01 2008
Message: Dear Mary and family,
I am a friend of Melissa's and on this day of your arrival in Mexico I wanted to let you know that you are in my special prayers. As a Reiki Master and a member of two large prayer circles, I have been sending prayers to Mary all along. Today I have requested that our efforts be redoubled to support your treatment in Mexico, Mary, and to support all the rest of you who are providing care and support. All blessings on your treatment....may it be smooth, easy and very beneficial. Know that there are many, many people who are sending you great energy.
Blessings,
Sarah*
Name: Steffani
E-mail:
Date Posted: 16:18, 24 12 2007
Message: Mary, I just want to say that I love you and I miss you so much. I am home on leave from the air force and ive come home to find out about this and everything going on with you....I will stop by this week to see you. I had no idea. Anything you or the family needs from me, Im here...I love you guys! I'll see you soon mary......
Name: Erikka Elsbury
E-mail:
Date Posted: 09:47, 13 12 2007
Message: I just wanted to stop by and let you know that you have been on my mind lately. I am praying for you everyday that your trip to Mexico will be successful and you will get the relief you need. If you ever want to talk please feel free to call me my cell number is 440-479-7125. I am getting my SCS surgery soon so I am really happy about that!
Name: Simply 4 Mary
E-mail:
Date Posted: 08:25, 22 11 2007
Message: I have designed a line of jewelry simply 4 Mary. Mary has helped me with this by choosing two of her favorite colors and an inspirational charm of courage. A large percentage of each sale goes towards maryswish. Please go to www.simply4mary.etsy.com for further details.
A great idea for Christmas and helping Mary!
Name: F
E-mail:
Date Posted: 22:32, 16 11 2007
Message: Mary,
I hope you will soon find relief...
My thoughts and best wishes,
F
Name: Bev
E-mail:
Date Posted: 12:53, 11 11 2007
Message: Hi sweetie,I also have CRPS in my right hand which started from Carpel tunnel, I to have TMJ thats weird. Best wishes to you.
Name: Sam
E-mail:
Date Posted: 18:52, 06 11 2007
Message: Ah Mary. I hate that your phone isnt on anymore :[ well I just wanted you to know that lately Ive been thinking about your going to Mexico and I wanted to let you know that you are truely one of my heros. I have never met someone with aas much drive and fight as you have and it will prevail :] stay strong lady!
love, sam
Name: Margaret Remotti
E-mail:
Date Posted: 13:31, 27 10 2007
Message: Hi,
Thank you, for taking the time to write, we appreciate all your comments, best wishes and prayers.
Mary's mom
Name: Dr. Mike Frazier
E-mail:
Date Posted: 15:33, 25 10 2007
Message: Mary,
My eighteen year old daughter has RSD. She is in a wheelchair most of the time. We have tried everything. I have read of the 'restart' idea and it sounds like it would work. Please know that we are praying for you.
Asking God to heal you and to let your journey pave the way for others like my Bethany to get the same treatment.
Dr. Mike Frazier
(now in Florida - born in Meriden , CT)
Name: Karen Testoni
E-mail:
Date Posted: 09:34, 23 10 2007
Message: Hi Mary and family,
I saw your story in the journal inquirer last night. You are such a beautiful, brave young lady. You do your part by staying strong and positive, and your family, friends and community are going to work hard and get you to mexico. Hang in there kiddo!! Great things are coming.
Name: Suzy
E-mail:
Date Posted: 20:39, 22 10 2007
Message: Thanks Mary. I have RSD but not whole body, i cant even imagine the pain you go through. I wish you all the luck in the world. If someone deserves to find the cure its you.
Suzy
PS if you find it Let me know.
Name: Joyce Phillips
E-mail:
Date Posted: 18:16, 21 10 2007
Message: Dear Mary, unfortunetly I do know the pain you are going through, but it means I know exactly what to pray for! God does hear us, and is there when we call. He brings us together in strength & love and knows our needs, and holds our tears. Remember Christ's joy is your strength, laughter is like good medicine to the soul, and your beauty is growing deeper and more evident through this season in your life. It will get better. I am praying for you daily, please call me if you need to talk, or vent! (951) 571-3471. God doesn't mind you venting either, I've done my share of yelling, and crying out. Be filled with hope that brings joy and peace.
Name: Anne Stanley
E-mail:
Date Posted: 19:42, 18 10 2007
Message: Hi Mary, Greetings from the middle of a cotton field in Baker, Florida. I just wanted you to know the entire family are praying for you and telling people about you. I am working on getting donations for your Mexico trip. I'll keep in touch.
Love,
Aunt Anne
Name: Yvonne
E-mail:
Date Posted: 09:03, 16 10 2007
Message: Hi Mary I used to live down the street from you and I went to school with your brother Jay. I also know James. Anyway, stay strong and keep the faith. Hugs, Yvonne
Name: Shane Helmick
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Date Posted: 11:49, 15 10 2007
Message: Not sure if you remember me, but I just wanted to stop in and say hello and that I hope everything is working out for you.
Name: Donna Stanley Gambrell
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Date Posted: 15:10, 10 10 2007
Message: Hey Mary,
This is from your cousin in Pensacola, FL. Our love and prayers are with you everyday!!! Keep fighting!!!!!We love you!!!!
Name: Stefania Lombardi
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Date Posted: 08:48, 10 10 2007
Message: Hi Mary,
Just wanted to let you know I was thinking about you. Stay strong!
Love,
Stef
Name: Lisa
E-mail:
Date Posted: 09:23, 29 09 2007
Message: Hi Mary,
I am so relieved to hear about the new treatment in Mexico. I have been praying for you and you are daily in my thoughts. I will get the word out, here, on the Monterey Peninsula to stir up some support for your treatment. I cannot fathom the pain you must be experiencing, its unthinkable to me that you have remained in discomfort for so long. I am so sorry.
Please be encouraged, there are so many people working hard to make a difference for you and when people come together Great Things happen!
Looking forward to meeting you - God Bless,
Lisa
(aka: WTRMOM)
Name: Erikka
E-mail:
Date Posted: 21:33, 28 09 2007
Message: Hi Mary,
My name is Erikka and unfourtunetly I suffer with RSD also. I have had it for about 5 years or so now and was lucky (if you can call it that) until Febuary of 2007 when my RSD spread to my right arm from my left arm and right foot. The RSD then spread up my leg to include the knee. I am able to walk but with difficulty. My prayers are with you always and I hope the up coming treatment in Mexico takes your pain away. I have been communicating with your sister Melissa a bit and you sound like a remarkable person. If you would like to communicate let me know. I am always willing to talk. And know a bit about RSD. I co-run a website with a girl I meet in a Rehab hospital who has full body RSD. Sorry this is long. Sendng my thoughts and prayers to you and to your family.
Name: The Murphy Family
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Date Posted: 11:15, 21 09 2007
Message: We wanted to give our good thoughts and wishes to the Remotti Family, the doctors, and everyone helping out with Mary's upcoming treatments and hope our donation can help.
Blessings ~ Joanna, Paul and Baby Boy Murphy
Name: Amanda Bagley
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Date Posted: 16:38, 10 09 2007
Message: Remotti Family~
I hope Mary is doing better and getting the proper treatments. Please call me if anyone needs anything!
You are in our thoughts and prayers!
The Bagley's
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